Sub-Saharan Africa SCD Resource Directory

The Global Action Network for Sickle Cell and Other Inherited Blood Disorders (GANSID) showcased member organizations and their activities for World Sickle Cell Day 2023. GANSID’s toolkit compiled graphics that can continue to be used to spread awareness and to start community conversations about sickle cell. Learn more here.

Several years ago, the American Society of Hematology (ASH) released a position statement on sickle cell trait (SCT). The statement expressed that it is medically inaccurate to claim sickle cell crisis as the cause of death based solely on the presence of sickled cells at autopsy. SCT rarely causes sudden death without the presence of […]

This study aims to test whether a new medication can boost energy levels for adults with SCD. Study participants will be given either the study drug or a “sugar pill” not knowing which they are receiving and will report their activity levels and hours of sleep. The study is paid for by a drug company and will be conducted by university scientists at health care clinics that treat people with SCD. If the study drug is found to work it could improve the health and well-being of those living with SCD.”

Sickle cell disease (SCD) — an inherited disorder that causes a person’s red blood cells to become deformed and get stuck in veins, blocking oxygenflow throughout the body — can cause many complications, including severe pain, stroke, organ failure, and even death. There is no widely availablecure for SCD, and care is inconsistent in the […]

Sickle cell disease (SCD) — an inherited disorder that causes a person’s red blood cells to become deformed and get stuck in veins, blocking oxygen flow throughout the body — can cause many complications, including severe pain, stroke, organ failure, and even death. There is no widely available cure for SCD, and care is inconsistent […]

International Clinical Trials Day is observed on May 20th every year to mark the anniversary of the first randomized clinical study, which was conducted by James Lind in 1747. On Saturday, May 20, 2023, take a moment to celebrate the accomplishments of clinical research professionals in the sickle cell disease (SCD) field and learn about […]

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