ASGCT Policy Summit banner

ASGCT Policy Summit

September 25, 2025 12:00 AM ( America/New_York (UTC -04:00) ) Washington DC In person

Join the American Society of Gene & Cell Therapy (ASGCT) leading policymakers, industry executives, and scientific stakeholders to discuss the most pressing issues and collaborate on innovative solutions at this dynamic, 1.5-day event in Washington, D.C.

  • Engage with Key Stakeholders: Hear directly from influential leaders from the FDA, and other federal agencies, as well as industry experts, on the policies that impact development and patient access.
  • Navigate the Regulatory Landscape: Gain a deeper understanding of new regulatory policies, international harmonization efforts, and best practices for clinical development.
  • Explore Innovative Payment Models: Discuss cutting-edge payment policies, including the CMMI CGT Access Model, and learn how to address the financial hurdles of high-value therapies.

Take advantage of this opportunity to meet leaders in the field, participate in dynamic sessions, and experience first-rate networking. This year's Policy Summit will be exclusively in-person.

UPCOMING EVENTS

April 18, 2026

Sickle Cell Disease Therapeutics Summit

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April 20, 2026 Sacramento, CA

Cayenne Wellness Inaugural Advocacy Day

Join Cayenne Wellness Center for our first annual CA SCD Advocacy Day at the California State Capitol (1315...
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September 16, 2026 Memphis, TN

APHON Conference

The Association of Pediatric Hematology/Oncology Nurses is hosting its annual conference September 16-18 in Memphis,...
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PAST EVENTS

April 11, 2026 The Westin Atlanta Airport

SCD Unified Action Forum

This convening will bring together patients, caregivers, clinicians, researchers, community-based organizations (CBOs), payors, industry representatives,...
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April 8, 2026

Test Event location

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April 8, 2026 Abuja, Nigeria

Test Event location

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April 8, 2026 Atlanta, GA

Test Event location 111

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March 30, 2026

Exploring New Research in Sickle Cell Disease: Fulcrum Updates from the Pioneer Study

Join Fulcrum Therapeutics for a patient-focused webinar on sickle cell disease (SCD) and ongoing research...
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March 26, 2026

Avascular Necrosis in Sickle Cell Disease: Early Warning Signs Every Patient Should Know

Avascular necrosis is a serious but often overlooked complication of sickle cell disease that can...
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March 19, 2026

“Huh, What did you say?” The Impact of Sickle Cell Disease on Your Hearing and Balance

Hearing loss and dizziness are real — and often overlooked — complications of SCD. Join...
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March 19, 2026

Hidden in the Family Tree: What the Sickle Cell Community Needs to Know About Hereditary Heart Disease

NFL champion Art Still shares a deeply personal story connecting sickle cell disease and hereditary...
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March 19, 2026 Washington DC

Understanding the Need for Improved Patient Access to SCD Treatment Options

Fulcrum Therapeutics is hosting a bipartisan briefing bringing together Members of Congress, clinical experts, patient...
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March 17, 2026

Virtual Sickle Cell Disease Policy Forum

Sickle Cell Community Consortium and Sick Cells are partnering to host a virtual sickle cell...
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March 12, 2026

Terumo Live Webinar: Clinical Expert Meeting

Please join us for our upcoming Clinical Expert Meeting. In this webinar, listeners will learn...
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March 11, 2026

2026 Cell and Gene Therapies Summit

The American Society of Gene and Cell Therapy is hosting this free virtual summit that...
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February 21, 2026 Clarksville, TN

It Still Takes A Village

Breaking the SSickle Cell Cycle Foundation, Inc. is hosting a community event featuring speakers on:...
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February 17, 2026

SCD Coalition Peer Learning Exchange #3

The Sickle Cell Disease Coalition is hosting its third Peer Learning Exchange focused on advocacy...
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January 29, 2026

GANSID Workshop Series: Effective Communication

Strengthen your advocacy skills with practical communication strategies led by Ms. Chloe Jang, Communications Lead...
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January 17, 2026 San Francisco, CA

SCAASF Apheresis & Blood Donation

SCAASF is hosting an advocacy and empowerment mini health fair.  AEP brings together clients, caregivers,...
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December 12, 2025

Sickle Cell Expo

Save the date! More information coming soon.
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December 11, 2025

SCDPAIN Virtual Annual Meeting

The virtual SCDPAIN Annual Meeting is scheduled for December 10, 2025. Members will receive the...
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November 25, 2025

Sickle Cell Disease & Trait Community Group

Cayenne Wellness Group is hosting a virtual trait community group featuring Intikhab Malik from Terumo...
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November 20, 2025

Sickle Cell Disease & Trait Community Group

Cayenne Wellness is hosting a community group featuring Melinda Dunn from Terumo Blood and Cell...
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November 19, 2025 Comprehensive Blood Cancer Center

Sickle Cell Disease & Trait Community Group

Cayenne Wellness is hosting a community group at the Comprehensive Blood Cancer Center in Bakersfield,...
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November 18, 2025

Sickle Cell Disease & Trait Community Group

Cayenne Wellness Group is hosting a virtual Men's Community Group featuring Mike Romanko from Terumo...
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November 15, 2025 Legion Memorial Park

Sickle Cell Warrior and Cancer Survivor Gala

Join the Sickle Cell Disease Association Miami-Dade Chapter, Inc., Fighting the Pain and United by Faith...
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November 14, 2025

GANSID 3rd International Congress

The Global Action Network for Sickle Cell & Other Inherited Blood Disorders (GANSID) holds its...
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November 13, 2025

Annual Sickle Cell Caregiver Summit

📅 Dates: November 13–16, 2025 🎯 Theme: The Heart of Caregiving: Balancing Mental Wellness, Advocacy & Legacy 🌐 Location: Virtual (Zoom...
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November 13, 2025

SCDAA P.O.W.E.R. ECHO Blood Transfusions and Iron Overload

Join the upcoming online P.O.W.E.R. ECHO Community Health Worker Training presented by Chiesi and led...
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November 13, 2025

Sickle Cell Disease & Trait Community Group

Cayenne Wellness Center is hosting a virtual community group with Cathi Christino from Terumo Blood...
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November 12, 2025 Washington DC

Sick Cells Therapeutics Conference

Sick Cells is excited to announce our inaugural Therapeutics Conference from November 12-13, 2025, in Washington,...
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November 11, 2025

Sickle Cell Disease & Trait Community Group

Cayenne Wellness is hosting a sickle cell disease and trait community group in Antelope Valley...
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November 11, 2025

Solutions in Sickle Cell

On Tuesday, November 11th, 5 PM CDT, join the Sickle Cell Warriors of Wisconsin for...
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November 6, 2025

Sickle Cell Disease & Trait Community Group

Cayenne Wellness Group is hosting a virtual trait community group featuring Jennifer Brandon from Terumo...
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November 6, 2025 Bethesda, MD

Workshop: Cardiopulmonary Complications of Hematopoietic Stem Cell Transplantation (HCT) and Gene Therapy

We are pleased to invite you to participate in the upcoming NHLBI workshop, Cardiopulmonary Complications...
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October 25, 2025 San Diego, CA

AABB Annual Meeting

The Association for the Advancement of Blood & Biotherapies (AABB) is hosting the premier event...
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October 24, 2025 Perth, Australia

4h Australian Sickle Cell Advocacy Conference

, Australian Sickle Cell Advocacy Inc (ASCA), will be hosting the 4th Sickle Cell Conference,...
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October 20, 2025

NORD® Rare Diseases and Orphan Products Breakthrough Summit.®

SAVE THE DATE: Shape the future of rare disease treatments, research and policy at the...
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October 15, 2025 Chicago, IL

SCDAA 53rd Annual National Convention

The Sickle Cell Disease Association of America, Inc. is hosting their 53rd Annual National Convention...
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October 5, 2025 Providence, RI

2025 APHL Newborn Screening Symposium

The 2025 APHL Newborn Screening Symposium will address state, national and international newborn screening, genetic testing and policy...
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October 3, 2025

SCDC Annual Summit

Join us for the 2025 SCDC Summit—a dynamic gathering of Coalition members and partners committed...
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October 2, 2025

FSCDR Virtual Symposium on Nursing in Sickle Cell Disease

The nursing profession is vital to the proper care of patients with sickle cell disease....
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October 1, 2025

Guidance for Coding & Reimbursement for Cell Therapies

Navigating reimbursement for cellular therapies can be challenging, but a new eCast from the Association...
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September 30, 2025

SCDPain Webinar

Webinar Title: Neuroimaging and Pain in Sickle Cell Disease: Mechanisms, Modalities, and Emerging Frontiers Date &...
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September 30, 2025

Sickle in View

Join the European Sickle Cell Federation for their inaugural capacity building workshop in London. The...
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September 29, 2025

The Keys to Academic Success – Sickle Cell Warriors

🔥 BREAK SICKLE CYCLE 🔥 ✨ Presents ✨ 🎯 WARRIORS ROOM 🎯 📚 Theme: The...
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September 28, 2025

March For a Sickle Cell Warrior

Warrior Ozioma Foundation is collaborating with St. Francis Cyon Catholic Youth Organization to host "March...
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September 28, 2025 St. Francis Catholic Church Abagana

Medical Outreach

Warrior Ozioma Foundation in collaboration with Cyon St. Francis Catholic Church Abagana is hosting a...
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September 27, 2025

SCAGO SCD Townhall

Join the Sickle Cell Disease Awareness Group of Ontario (SCAGO) in partnership with Ontario Health...
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September 26, 2025 Ontario, Canada

SCAGO Community Get-Together

Attention: Hamilton! Join us for a Sickle Cell Awareness Month Community Get-Together in collaboration with...
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September 26, 2025

SCDAA Social Media Party

SCDAA invites you to join us on Instagram for our 2025 Social Media Party on...
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September 26, 2025

Women with Sickle Cell: Reproductive Health Matters

Please join the Foundation for Women & Girls with Blood Disorders on Friday, September 26th...
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September 25, 2025 Washington DC

ASGCT Policy Summit

Join the American Society of Gene & Cell Therapy (ASGCT) leading policymakers, industry executives, and...
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September 25, 2025

8th Annual Chicago Sickle Cell Summit

We’re proud to support our partner, Beverly Chukwudozie, and Sickle Cell Warriors as they host...
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September 25, 2025

HHS Webinar Series on Sickle Cell Disease and Gene Therapies Part 2

In observance of National Sickle Cell Awareness Month, the HHS Office for Human Research Protections...
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September 24, 2025

SCDAA Social Media Party

SCDAA invites you to join us on Instagram for our 2025 Social Media Party on...
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September 22, 2025 Houston, TX

Houston Sickle CELLebration

📣 Join us for the Houston SICKLE CELLebration Lunch & Learn in honor of Sickle...
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September 22, 2025

SCDAA Social Media Party

SCDAA invites you to join us on Instagram for our 2025 Social Media Party on...
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September 22, 2025

Sickle Cell in Focus 2025

The 18th annual Sickle Cell in Focus (SCiF) conference will be held in a virtual...
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September 20, 2025 Boston, MA

2025 Annual Walk for Sickle Cell

Join the Massachusetts Sickle Cell Foundation for their Annual Walk for Sickle Cell! 📅 Mark...
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September 20, 2025 Houston, TX

Comprehensive Symposium on Sickle Cell Disease

Join The Potter's Smile and As One Foundation for their Comprehensive Symposium on Sickle Cell...
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September 20, 2025 Ontario, Canada

SCAGO’s Peer Support Session- Ottawa

Navigating school can be tough, but support makes all the difference. ❤️ Students, Parents and...
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September 19, 2025

Cayenne Blood Drive

Blood Donors Make a Difference! Join us for a community Blood Drive hosted by Center...
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September 18, 2025

Data Science in Biomedical & Epidemiological Research in Africa

Join Sickle in Africa for their next webinar series!  Webinar: Advancing Biomedical Discovery through the...
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September 18, 2025

HHS Webinar Series on Sickle Cell Disease and Gene Therapies Part 1

In observance of National Sickle Cell Awareness Month, the HHS Office for Human Research Protections...
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September 17, 2025

17th Annual Hybrid Sickle Cell Disease Educational Summit

The Cayenne Wellness Center’s Annual Sickle Cell Disease Educational Summit is a four-day event dedicated to increasing...
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September 16, 2025

Be a Partner in Your SCD Care

Join Pathways to Trust in a wonderful interactive webinar on how to use your voice...
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September 13, 2025 TBD

SCAASF KMJ Health and Wellness Expo and Walk

We’re excited to invite you to our KMJ Health and Wellness Expo and Walk on...
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September 12, 2025 Lagos, Nigeria

T.A.L.L. 1.0

You are invited to this special 2-in-1 event to celebrate the Resilience Boss Toyin Adesola...
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September 11, 2025

SCDC Peer Learning Exchange

Introducing the first-ever SCD Coalition Peer Learning Exchange Join us on September 11 at 10:00...
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September 11, 2025 Lagos, Nigeria

T.A.L.L. 1.0

You are invited to this special 2-in-1 event to celebrate the Resilience Boss Toyin Adesola...
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September 10, 2025

NORD Mobilize for Newborn Screening: Tools for Advocates During Awareness Month

Join the National Organization for Rare Disorders (NORD) staff as for a virtual grassroots advocacy...
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September 8, 2025

SCD Nursing Excellence Train the Trainer Bootcamp

It’s that time again, the SCD Nursing Excellence Train-the-Trainer bootcamp application is open. The bootcamp...
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September 6, 2025 Atlanta, GA

45th Annual Sickle Cell 5k Road Race/Walk

Support the Sickle Cell Foundation of Georgia's Camp New Light during this longstanding event! Run...
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September 6, 2025 Nashville, TN

5th Annual Sickle Cell Warrior Charity Walk-Run 5k

Join Breaking the Ssickle Cell Cycle for their 5th Annual Sickle Cell Warrior Charity Walk-Run...
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September 6, 2025 Washington DC

Critical Conversations Dinner: Maternal Mortality and Morbidity

Join SC RED for our annual Critical Conversations Dinner, an evening centered on connection, advocacy,...
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September 6, 2025

Sickle Cell Uhuru Trust Charity Walk

The Sickle Cell Uhuru Trust Charity Walk will take place on Saturday, September 6, 2025...
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September 6, 2025 Milwaukee, WI

Walk To Break The Sickle Cycle

The Sickle Cell Warriors of Wisconsin invite you to get active and raise awareness and...
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September 5, 2025 Atlanta, GA

SCDAA Golf Classic

Inaugural SCDAA Golf Classic September 5 | Douglasville, Georgia | Shotgun start at 9 a.m....
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September 5, 2025 Greenville, NC

Tate Holbrook Annual Sickle Cell Disease Update

East Carolina University's Comprehensive Sickle Cell Program and the Department of Pediatrics Hematology/Oncology will host...
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September 4, 2025 Milwaukee, WI

Wisconsin’s Sickle Cell Summit

Join us for a day of learning, sharing, and connecting with others in the sickle...
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August 27, 2025

Building Lifesavers: Internal Preparedness and External Engagement for High School Donors

Join us for a dynamic webinar on Building Lifesavers: Internal Preparedness and External Engagement for High...
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August 15, 2025 Ontario, Canada

SCAGO Sickle Cell Disease Summit 2025

The annual SCAGO Sickle Cell Summit is a two-day event aimed at providing sickle cell...
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August 14, 2025

Sickle Cell Outcomes, Policy and Excellence

Texas Children's Cancer and Hematology Center is hosting a conference to improve research, outcomes, and...
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August 6, 2025

SCD and School: An Educational Workshop

Educational Equity Starts with Understanding. Join us for a timely and empowering workshop focused on...
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August 4, 2025

SCDPAIN Networking Meeting

Join the Sickle Cell Disease Pain Analgesia & Integrative Network's (SCDPAIN) Networking Meeting on August...
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July 30, 2025

Webinar Wednesday: Is Gene Therapy Right For Me?

Join Cayenne Wellness Center & Children´s Foundation to explore gene therapy as a potential treatment...
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July 29, 2025

Working While Unwell: Real Talk on Health, Energy, and Expectations

Whether managing chronic illness, recovering from short-term sickness, or supporting colleagues facing health challenges, this...
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July 23, 2025 Washington DC

Access to a Cure: Ensuring Equitable Access to Advanced Therapies for Children with Sickle Cell Disease

ASGCT and the Children's Hospital Association are co-hosting a briefing on SCD therapies. The briefing...
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July 21, 2025

NASCC Annual SCD Centers Meeting & Consensus Conference

Attendance at the 4th Annual Meeting of NASCC is your opportunity to connect with colleagues,...
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July 19, 2025 Baltimore, MD

12th Annual SCDAA Warrior Walkathon

Rally your friends, family and co-workers, register to join us on July 19, and help...
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July 19, 2025

The Empowered Caregivers Forum 2025 – Session II

Hosts Carla Lewis and Rae Blaylark are mothers of children born with sickle cell disease....
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July 19, 2025

The Empowered Caregivers Forum 2025 – Session III

Hosts Carla Lewis and Rae Blaylark are mothers of children born with sickle cell disease....
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July 17, 2025

Enhancing the Clinical Trials Potential in Africa

Join us for the first-ever PFMD–CTDN webinar, co-hosted with Project PINK BLUE, and explore: -...
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July 15, 2025

Sickle Cell Warriors Convention

Save the date! More information coming soon.
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July 11, 2025

1st TIF Pan American Conference on Thalassaemia & Other Haemoglobin Disorders

The Thalassaemia International Federation is delighted to announce the organisation of the “1st TIF Pan...
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June 28, 2025 Orlando, FL

Sickle Cell Insights Seminar 2025

Kids Conquering Sickle Cell Disease is excited to invite you to the 2025 Sickle Cell...
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June 28, 2025

Take Your Loved One for a Check-Up

The Sickle Cell Association of Texas Marc Thomas Foundation is participating in a special Take...
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June 20, 2025 Washington DC

It’s About Time: Defining Clinical Endpoints for Bleeding in Studies of Women and Girls

This event will be a special panel discussion focused on increasing women's participation in clinical...
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June 19, 2025

2025 World Sickle Cell Day 24-hr Marathon Event

The Global Action Network for Sickle Cell and Other Inherited Blood Disorders (GANSID) and Cayenne...
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June 19, 2025

Juneteenth Block Party with A Sickle Cellabration (IN-PERSON)

The Sickle Cell Association of New Jersey is partnering with The Source of Knowledge Bookstore...
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June 19, 2025

Shine The Light On Sickle Cell

William E. Proudford Sickle Cell Fund invites you to join with friends, family, neighbors, and...
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June 19, 2025 Baltimore, MD

Summer Sickletini Happy Hour | Baltimore, Maryland (IN PERSON!)

Join the Sickle Cell Disease Association of America (SCDAA) on Wednesday, June 19, at Collective...
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June 18, 2025

Trust Through Progress: Propelling Sickle Cell Care Universally

The World Health Organization African Region is hosting a World Sickle Cell Awareness Day Webinar...
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June 14, 2025

27th Annual Magic City Sickle Cell Walk

The 27th Annual Magic City Sickle Cell Walk will be held Saturday, June 14, 2025...
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June 12, 2025

Access to New Therapies: Hope or Hype?

Sickle Cell Foundation Nigeria is hosting a discussion to mark world sickle cell day 2025...
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June 11, 2025

NPAF Policy Consortium

The National Patient Advocate Foundation (NPAF) is hosting a Policy Consortium Financial Hardship Hurts Health on...
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June 10, 2025 Washington DC

Blood Advocacy Week: Advocacy Summit

All stakeholders interested in supporting the nation’s blood supply are invited to attend American Blood...
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June 6, 2025 Broward County Convention Center

19th Annual Sickle Cell Disease Research & Educational Symposium

The Foundation for Sickle Cell Disease Research is hosting the 19th Annual Sickle Cell Disease...
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June 6, 2025

Plenary Session 6: The Power of One Voice: Influence and Evidence to Scale Quality SCD Care-What Will it Take?

The 5th Global Congress on Sickle Cell Disease is hosting Plenary Session 6 on June...
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June 3, 2025

Advancing Sickle Cell Disease Care Through Public Health and Community Interventions

Join PRIME for an insightful webinar on advancing sickle cell disease (SCD) care, advocacy, and...
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June 2, 2025 Washington DC

NORD® Rare Disease Scientific Symposium

Rare disease breakthroughs require collaboration. Join a community of researchers, clinicians, industry leaders, and others...
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May 31, 2025

Sickle Cell Disease Transitioning Across Life Span

Join the Sickle Cell Disease Awareness Group of Ontario for a free webinar on May...
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May 14, 2025

APHON Spring Education Exchange (SEE)

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May 14, 2025

IASCNAPA Educational Congress 2025

The International Association of Sickle Cell Nurses and Professional Associates (IASCNAPA) is hosting their virtual...
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May 14, 2025

Virtual Walk/Run for World Blood Donor Day

In honor of World Blood Donor Day on June 14, the AABB Foundation invites you...
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May 13, 2025

NORD Grassroots Advocacy Training: Protect Medicaid

Please join NORD to learn more about the importance of the Medicaid program to rare...
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May 7, 2025

Advances in the Treatment of Sickle Cell Disease: Moving Toward a Cure

Health care providers and sickle cell warriors are invited to attend Memorial Sloan Kettering Cancer...
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April 30, 2025

Sickle Cell Disease: Existing Paradigms and Novel Approaches

The New York Academy of Sciences is hosting an interdisciplinary symposium titled: Sickle Cell Disease:...
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April 24, 2025

Sickle Cell Disease Masterclass – The Current State of Sickle Cell Disease Treatments: Pipelines or Pipe Dreams?

The Sickle Cell Disease Association of America (SCDAA) invites you to attend an upcoming Sickle...
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April 12, 2025

Navigating Relationships & Social Life: A webinar for men living with SCD

Join Sickle Cell Uhuru Trust for an exciting and insightful webinar where they will dive...
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April 9, 2025 Cincinnati Children\'s Hospital Medical Center

2025 Hemoglobinopathy Counselor Training Course

This two-day course, presented by the Cincinnati Comprehensive Sickle Cell Center, will take place on...
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March 20, 2025

9th Annual Leadership Summit

Save the date.
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March 16, 2025

Sickle Cell Care Coordination for Achieving Patient Empowerment (SCCAPE)

Returning for its sixth year, this dynamic 4-day multidisciplinary conference will take place from Sunday, March...
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March 12, 2025

ASGCT Empowering Patients 2025: A Cell and Gene Therapies Summit

The American Society of Gene and Cell Therapy's (ASGCT)  inaugural virtual event March 12 and...
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March 11, 2025

2025 SCD Policy Forum

The Sickle Cell Disease Policy Forum is back and will take place on March 11-12,...
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March 8, 2025

SCUT International Women’s Day – Accelerate Action Event

The Sickle Cell Uhuru Trust (SCUT) is hosting Accelerate Action, an International Women's Day event...
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February 27, 2025

Rare Disease Day LinkedIn Live Event

Join Terumo Blood and Cell Technologies where attendees will explore how innovation and advocacy are...
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February 22, 2025

Sickle Cell Awareness Family Day and 5K Walk

Cayenne Wellness Center is hosting a Sickle Cell Awareness Family Day and 5K Walk on...
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February 21, 2025

NASEM: Functional Outcomes of Sickle Cell Disease — The Whole-Person Experience

NASEM is hosting its third  public, information gathering webinar focusing on the multisystem effects of...
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February 19, 2025

Sickle Cell Disease & Trait Community Group

Cayenne Wellness and Vertex Pharmaceuticals are hosting a sickle cell disease & trait community group...
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February 15, 2025

Advocacy MiniSeminar

Cayenne Wellness is partnering with Axis Advocacy to provide part 1 of their miniseminar on...
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February 7, 2025

NASEM Pain Management and Sickle Cell Disease Webinar

A National Academies consensus study committee will host a second public, information-gathering webinar in a...
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January 18, 2025

Cayenne Wellness Center Open House!

Cayenne Wellness Center (CWC) is opening their in-person doors to all individuals in the Sickle...
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January 16, 2025

Sick Cells Ambassador Priority Topic Meeting

Sick Cells staff Kelly Hawthorne and Arielle Krahenbuhl are hosting the first Ambassador Priority Topic...
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December 22, 2024

Jingle & Mingle SCD Holiday Giveaway!

Join The KIS Foundation, Inc. and The Sickle Cell Foundation of Orange County for a...
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December 21, 2024

Mini-Seminar: Mental Health Part III (Sound Healing)

Join Cayenne Wellness Center and Children's Foundation  for a mini-seminar focused on mental health and...
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December 20, 2024

Community Engagement and Outreach Workshop

Join Dr. Edward Donnell Ivy for an impactful Community Engagement and Outreach Workshop designed to...
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December 20, 2024

Hospitalization and Sickle Cell Disease Webinar

Join the @NASEM Health and Medicine Division for a public webinar on December 20 focusing...
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December 18, 2024

AABB Vaccination and Blood Donation Policies Protect Blood Safety (24EL-498)

This webinar will provide valuable insights into the scientific evidence confirming the safety of blood...
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December 18, 2024

Mental Health & Suicide Prevention

Join Cayenne Wellness and Children's Foundation for a virtual webinar titled "We Care! Mental Health...
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December 17, 2024

Rare Disease Day 2025 Kick Off

The National Organization for Rare Disorders (NORD) invites you to join them and learn how...
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December 17, 2024

Sickle Cell & Trait Community Gathering

Join Cayenne Wellness In Person for connection, education, and support! Sickle Cell & Trait Community...
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December 14, 2024 Nashville, TN

BTSSCC Merry Christmas Bash

Mental stress has been identified as an independent cause of triggering a sickle cell pain...
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December 14, 2024

SCUT Hope for the Holidays – A Sickle Cell Christmas

Join Sickle Cell Uhuru Trust (SCUT) for a day of joy, fellowship, and care as...
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December 7, 2024 San Diego Convention Center

66TH ASH ANNUAL MEETING AND EXPOSITION

Mark Your Calendars! The American Society of Hematology is returning to San Diego for the...
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November 23, 2024 Atlanta, GA

SCFG Black Tie Gala 2024

Please join us for a Black-Tie Charity Gala Affair benefiting Georgia's sickle cell community! This...
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November 19, 2024

SCD S.O.A.R.: Affordable Housing

Services, Opportunities, Activities, Resources Series is hosting a session on Affordable Housing on Tuesday, November...
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November 15, 2024

Sickle Cell Caregivers Summit

The Annual Sickle Cell Caregivers Summit, Nov. 15-17, 2024, is a premier event designed to...
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November 9, 2024

CELLebration! A Gospel Musical Journey

CELLebration! A Gospel music journey of 5 Generations of SCD, from painful & early death...
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November 8, 2024

Global Congress of the Global Action Network for Sickle Cell and Other Inherited Disorders

Join the Global Action Network for Sickle Cell and Other Inherited Blood Disorders (GANSID) for...
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November 7, 2024

Haematocon 2024

The Indian Society of Hematology & Blood Transfusion, Hematology Oncology Society of Nagpur, and Hemex...
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November 6, 2024

South Carolina State Summit for Healthcare Providers on Sickle Cell Care

Welcome to the South Carolina Summit for Healthcare Providers on Sickle Cell Care! Join us at...
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November 2, 2024

Sickle Cell & Chronic Pain Management Symposium 2024

Join Kids Conquering Sickle Cell Foundation for their symposium event. This event is designed for...
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November 1, 2024

Sickle Cell & Chronic Pain Management Symposium 2024

Join Kids Conquering Sickle Cell Foundation for their symposium event. This event is designed for...
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November 1, 2024 Orlando, FL

Sickle Cell & Chronic Pain Management Symposium 2024

Kids Conquering Sickle Cell Disease Foundation is celebrating our 10 th anniversary providing valuable services...
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October 28, 2024

Sickle Cell Data Collection Program Summit

The 2024 Sickle Cell Data Collection Summit will be held online October 28. The Summit...
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October 26, 2024

Marketplace Insurance Kick Off Event

The As One Foundation is hosting a Marketplace Insurance Kick Off Event on October 26,...
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October 26, 2024

SCAGO Sickle Cell Disease and Complications Including Stroke

The SCAGO is excited to announce the October Learning for Life session “Sickle Cell Disease...
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October 23, 2024

SCDAA 52nd Annual National Convention

Save the Date: The 52nd Annual National Convention will be held from October 23-26 in...
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October 23, 2024

SCDAA 52nd Annual National Convention

Save the Date: The 52nd Annual National Convention will be held from October 23-26 in...
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October 23, 2024

Sickle Cell Consortium Office Hours

Office Hours will be held on Wednesday, October 23, 2024, from 3 to 6 pm...
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October 19, 2024

2024 Acadiana Sickle Cell Walk/Run and Health & Wellness Expo

Join the highly-anticipated annual Health & Wellness Expo, presented by the 100 Black Men of...
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October 19, 2024

Toronto Waterfront Marathon

The Sickle Cell Awareness Group of Ontario is the leading provincial charitable patient organization providing...
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October 18, 2024

Nothing About Us Without Us: Challenges and Opportunities for Engaging Communities in the Development of Gene Therapies in Resource-Limited Settings

Join Caring Cross in their Scientific Seminar. Michael W. Louella talks with two community advocates...
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October 18, 2024 St. Petersburg, FL

Sickle Cell Fall Symposium

Join us for John Hopkins All Children's Hospital Fall Sickle Cell Symposium to learn more...
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October 17, 2024

Critical Conversations: Contraception in Sickle Cell Disease

Join The Sickle Cell Reproductive Health Education Directive (SCRED) for their next Critical Conversation Webinar...
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October 16, 2024

Advancing Rare Disease Therapies Through an FDA Rare Disease Innovation Hub

The Reagan-Udall Foundation for the FDA, in collaboration with FDA’s Rare Disease Innovation Hub, will...
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October 15, 2024

Policy Consortium: Listening Session

Join the National Patient Advocate Foundation (NPAF) for this listening session. Policy Consortium brings together...
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October 13, 2024

Give4Life and Raise Awareness: Sickle Cell Bill-S.2710/A.4052

We are back this year for another wonderful event to update you on the newly...
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October 12, 2024

AYA Warrior Community Day

DATE: Sat Oct. 12 TIME: 2pm - 5pm COST: $5 per person, includes food + unlimited arcade gaming...
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October 12, 2024 Orlando, FL

The Power Within: Education & Empowerment Luncheon

Join Kids Conquering Sickle Cell Disease Foundation Inc to be EMPOWERED, EDUCATED, & ENCOURAGED! Join...
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October 12, 2024

WALK TO BREAK THE SICKLE CYCLE

Grab your family and friends and Lets get active and Raise Sickle Cell Awareness One-Mile...
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October 5, 2024

Empowered Caregivers Forum 2024- Session III

Join Carla Lewis, CEO of Kids Conquering Sickle Cell Disease Foundation and Rae Blaylark, CEO...
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October 5, 2024 Boston, MA

State of Sickle Cell Care in MA

State of Sickle Cell Care in MA - Challenges and the Way Forward Hosted by...
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October 2, 2024

Community Town Hall & Education: Oxybryta

Join the Sickle Cell Consortium & SCDAA for an Educational Session on the FDA &...
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September 30, 2024

US News live- A Call to Action to Reverse Racial Stigmas in Sickle Cell Disease Care

This webinar is part of Healthcare of Tomorrow, a virtual event series from U.S. News...
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September 28, 2024

2024 Sickle Cell Awareness Blood Drive & Health Expo

Together with the American Red Cross, the Sickle Cell Coalition of Maryland, and Top Ladies...
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September 28, 2024

50th Annual 5K/1K Walk, Jog, Bike for a Cure

What? Grab your family and friends and Lets get active and Raise Sickle Cell Awareness...
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September 28, 2024

7TH ANNUAL LAS VEGAS SICKLE CELL WALK

Join us for the 7th Annual Las Vegas Sickle Cell Walk, a community-driven event dedicated...
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September 28, 2024

Annual Sickle Cell Disease Awareness

Annual Sickle Cell Disease Awareness Event Come join NEW JERSEY HAITI PARTNERS at the Sphinx...
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September 28, 2024

Ellafest℠ 2024

Ellafest℠ 2024 is finally here! Join us for a day filled with music, food, and fun...
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September 28, 2024

Fifth Annual Sickle Cell Awareness 5K Walk

In honor of Sickle Cell Awareness month in September, The Melodies Center and Albany Medical...
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September 28, 2024 St. Louis, MO

Radiant Red: A Fashion Show for Sickle Cell Awareness

Get ready for a fabulous fashion show that will shine bright like a radiant red...
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September 28, 2024

Sickle Cell Awareness Brunch

Welcome to the Sickle Cell Conquerors of CF - Sickle Cell Awareness Brunch! Join us on Sat...
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September 28, 2024

“ALL OF US” Sickle Cell Fundraising Event

"ALL OF US" Sickle Cell Fundraising Event will be an all day experience! Our outside FESTIVAL is...
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September 27, 2024

Hispanic Sickle Cell Seminar

Come out and learn about sickle cell disease and programs that support individuals and families...
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September 27, 2024

Next Steps After Pfizer’s Withdrawal of Voxelotor

The National Alliance of Sickle Cell Centers (NASCC) in partnership with the Sickle Cell Disease...
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September 24, 2024 Washington DC

HHS Inaugural Sickle Cell Disease Summit

On behalf of HHS Secretary Xavier Becerra and Assistant Secretary for Health Admiral Rachel Levine,...
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September 21, 2024 Washington DC

Sickle Cell Awareness Community Day Program

Join us this September for a special Community Day program in honor of National Sickle...
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September 21, 2024

Sickle Cell Disease Dinner and Musical Extravaganza

Join the Sickle Cell Disease Association of America- St. Ptersburg Chapter for their Sickle Cell...
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September 21, 2024

Walk/5K Run for Sickle Cell

Join the Massachusetts Sickle Cell Association for their walk/run event! The in-person walk/run will take place in...
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September 20, 2024

Patient and Care Partner Perspectives on Safety Considerations for Approved Gene Therapy Treatments for Rare Diseases

The FDA Center for Biologics Evaluation and Research (CBER) is hosting a public patient listening...
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September 19, 2024

17th Annual Sickle Cell in Focus Conference

A world-class educational update on sickle cell disease, the Sickle Cell in Focus (SCiF) conference...
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September 19, 2024

UAMS 2024 Annual Sickle Cell Symposium

Join the University of Arkansas for Medical Sciences for their 2024 Annual Sickle Cell Symposium- Living...
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September 18, 2024

16th Annual SCD Educational Summit

The Cayenne Wellness Center’s Annual Sickle Cell Disease Educational Summit spans four days and aims...
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September 18, 2024

SCDAA Nod to “Naz” Traveling Exhibit

Sickle Cell Disease Association of America, Inc. invites all to attend the Nod to "Naz"...
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September 17, 2024

Improved Treatments for Children with SCD Webinar

On Tuesday September 17, 2024, 12:00 – 1:30 pm ET, OMH will host a webinar with...
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September 17, 2024

Terumo Blood and Cell Technologies: Patient Listening Virtual Roundtable

Join Terumo Blood and Cell Technologies for a patient-focused, virtual roundtable where we will learn...
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September 16, 2024

3rd Annual Sickle on the Green Golf Tournament

Join Sickle Cell Partners of the Carolinas for the 3rd Annual Sickle on the Green...
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September 14, 2024

13th Annual Stroll Sickle Cell-ebration

Join the Sickle Cell Association- St. Louis for their Annual Sickle Cell Stroll! The Sickle...
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September 14, 2024 Washington DC

2024 Cure Sickle Cell Now 5K Walk/Run

Join Howard University Center for Sickle Cell Disease  in front of Howard University Hospital at...
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September 14, 2024 Atlanta, GA

Sickle Cell 5k Road Race/Walk | Concert| Candlelight Vigil

Registration is now open for the 44th Annual Sickle Cell Foundation of Georgia, Inc. 5K...
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September 14, 2024

Sickle Cell Anemia Awareness of San Francisco (SCAASF) KMJ Health & Wellness Expo

Save the Date! Come and join Sickle Cell Anemia Awareness of San Francisco for their...
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September 12, 2024

More Than Our Sickle Cell: A Global Community Conversation (SEPT)

Join us for LIVE conversations with Biba Tinga, Warrior Mom & President of Sickle Cell Disease...
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September 7, 2024

10th Anniversary Decade of Hope Gala

Join Sickle Cell Uhuru Trust Kenya and the Global Action Network for Sickle Cell and...
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September 7, 2024

Sickle Cell Warrior Walk & Run 5k

Breaking The Sickle Cell Cycle Foundation, Inc. cordially invites you to the 4th Annual Sickle...
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September 7, 2024

Sickle Cell-ebration of Hope Champions Dinner & Gala

Join the Sickle Cell Foundation of Minnesota for a fun-filled evening of inspiration, aspiration, and...
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September 7, 2024

Transformative Curative Gene therapy transplant for Sickle Cell Anemia Educational Symposium

Save the date for this educational symposium! Join TOVA Community Health and hear from guest...
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September 6, 2024

Commercial Challenges for Gene Editing (including manufacturing and patient access)

Join Caring Cross for their Technology Education webinar. This course will explore the commercial landscape...
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September 6, 2024 Washington DC

Critical Conversations: Access to Fertility Services

Sickle Cell Reproductive Health Education Directive's (SCRED) Critical Conversations Panel And Dinner Aims To Address...
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September 4, 2024

CMS & ASH Town Hall Meeting

The Centers for Medicare & Medicaid Services (CMS), in partnership with the support of the...
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September 4, 2024 Washington DC

Scientific Advancements in Gene Therapies: Opportunities for Global Regulatory Convergence

The Reagan-Udall Foundation for the FDA, in collaboration with the Bill & Melinda Gates Foundation,...
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August 29, 2024

P.O.W.E.R ECHO CHW Training

Join Sickle Cell Disease Association of America (SCDAA) for their next free P.O.W.E.R ECHO CHW...
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August 28, 2024

Sickle Cell Empowerment Circle

Join the monthly empowerment circle for community members impacted by sickle cell disease Support &...
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August 24, 2024

HHS Sickle Cell Disease Summit

Summit Theme: Empowered and Thriving SCD Warriors and Communities When: Tuesday, September 24, 2024 Time:  9:00 AM –...
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August 24, 2024

Sickle Cell Foundation of Georgia Transition Series

READY... SET... TRANSITION! for ages 16-18. Preparing tens to live independently and live well with...
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August 23, 2024

SCAGO Sickle Cell Disease Summit

The 4th Annual Sickle Cell Awareness Group of Ontario (SCAGO) Sickle Cell Summit themed  "Innovative...
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August 19, 2024

SCD SOAR: Mental Health

Sickle Cell Disease SOAR is a new virtual series designed to enhance quality of life...
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August 17, 2024

2024 Sickle Cell Patient Education: Transition Care Management

Fred Hutch Cancer Center, Seattle Children’s, and Metropolitan Seattle Sickle Cell Taskforce invite you to...
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August 17, 2024

Is the Cure Right for Me? Webinar

This event aims to educate our community on the accessibility of a cure for sickle...
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August 13, 2024

Sickle Cell and Thalassemia: The Role of Individuals, Advocates, Health Workers, and Organizations in Driving Change and Support

Join the Global Sickle Cell Alliance for an empowering webinar on "Sickle Cell and Thalassemia:...
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August 12, 2024

NHBLI’s Annual SCD Research Meeting

The National Heart, Lung, and Blood Institute (NHLBI), a part of the National Institutes of...
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August 10, 2024

SCAASF Advocacy & Empowerment Session

Join Sickle Cell Anemia Awareness of San Francisco for their Advocacy & Empowerment session!
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August 7, 2024

Cayenne Wellness Center’s Understanding 504 and IEP Plans

Cayenne Wellness Center is hosting a virtual educational workshop about Sickle Cell Disease and School....
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August 7, 2024

Cayenne Wellness Center’s Understanding 504 and IEP Plans

Cayenne Wellness Center is hosting a virtual educational workshop about Sickle Cell Disease and School....
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July 31, 2024

SCAF Book Launch

The Sickle Cell Aid Foundation (SCAF) is delighted to extend a special invitation for the...
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July 30, 2024

Sleep Disturbances in Sickle Cell Disease Webinar

Join the Sickle Cell Data Collection project for one of their quarterly webinars featuring experts...
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July 28, 2024

NASCC Annual Meeting and Consensus

The National Alliance of Sickle Cell Centers is hosting it's annual consensus conference in Minneapolis,...
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July 27, 2024

Diversity & Inclusion & SCD

Join Cayenne Wellness Center for their miniSeminar: Diversity and Inclusion & SCD - Care for...
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July 27, 2024

SCAGO Transition from Paediatric to Adult Life (School and Healthcare)

Join the Sickle Cell Awareness Group of Ontario (SCAGO) for their Learning for Life Series:...
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July 27, 2024

Sickle Cell and Thalassemia: The Role of Individuals, Advocates and Organizations in Driving and Support.

Join the Global Sickle Cell Alliance as they culminate their social media campaign to raise...
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July 26, 2024 Atlanta, GA

Back to School Block Party

Join the Sickle Cell Foundation of Georgia, My Three Sicklers & the Sickle Cell Consortium...
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July 22, 2024

The Thriving Warrior: Supporting the Mental Health Needs of Individuals Living with Sickle Cell Disease

In observance of National Minority Mental Health Awareness Month, the HHS Office of the Assistant...
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July 20, 2024

SCDAA Warrior Walkathon

Walk with the Stars is now the SCDAA Warrior Walkathon! Rally your friends, family and...
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July 17, 2024

11th Annual Sickle Cell Warriors & Caregivers Convention

Join the 11th Annual Sickle Cell Warriors & Caregivers Convention, July 17-21, at the Westin...
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July 13, 2024

SCAASF Advocacy & Empowerment Program Session

Join Sickle Cell Anemia Awareness of San Francisco for their Advocacy & Empowerment session on...
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July 13, 2024

SCDAA Masterclass En Español

Únase a la Asociación de Enfermedades de Células Falciformes de América (Sickle Cell Disease Association...
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July 13, 2024 Atlanta, GA

Sickle Cell Foundation of Georgia Transition Series

READY... SET... TRANSITION! for ages 16-18. Preparing tens to live independently and live well with...
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June 29, 2024

Sickle Cell Anemia Awareness of San Francisco (SCAASF) KMJ Health & Wellness Expo

Thank you for taking part in this remarkable opportunity to raise awareness for the sickle...
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June 29, 2024

Sickle Cell Disease Association of Illinois (SCDAI) Bowling Fundraiser

In honor of World Sickle Cell Day, please join SCDAI for a FUN-filled evening of...
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June 27, 2024

European Sickle Cell Federation 2024 Summit

Join the European Sickle Cell Federation (ESCF) at the Crowne Plaza Hotel, Blanchardstown, Dublin for...
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June 27, 2024

White House Black Initiative Lunch & Learn: Supporting the Civil Rights of Students with Disabilities

The White House Initiative on Educational Equity, Excellence, and Economic Opportunity for Black Americans cordially...
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June 24, 2024

National Health Authority of India Workshop on Sickle Cell

Join the National Health Authority of India as it holds this virtual capacity building workshop...
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June 24, 2024

Rising Above my “Red Curve” Challenges

Join the Ikorodu Public Schools Sickle Cell Club as they present this in-person event! LOCATION:...
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June 22, 2024

Martin Center Sickle Cell Initiative 28th Annual Sickle Cell 5K Walk/Run

There are hundreds of families in Central Indiana living with the burden of Sickle Cell...
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June 22, 2024

Projecto Luaforme evento do dia mundial da anemia falciforme

A ONG EFATHA (Associação de Ajuda as Crianças com Hemoglobinopatia) e o Projecto Luaforme convidam...
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June 22, 2024

Sickle Cell Association of Houston Party with a Purpose

Come rain or shine, join the Sickle Cell Association of Houston celebrating World Sickle Cell...
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June 21, 2024

Project SPIRIT Sickle Cell, Inc., Blood Drive

Marylanders who identify as Black or African American are welcome to participate in this livesaving...
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June 20, 2024

Sickle Cell Foundation Nigeria Virtual Townhall Meeting

Join the Sickle Cell Foundation of Nigeria as part of global World Sickle Cell Day...
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June 19, 2024

5th Annual World Sickle Cell Day 24 Hour Celebration

Spanning midnight to midnight on Saturday, June 19th, the Sickle Cell Community Consortium is proud...
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June 19, 2024

SCAGO World Sickle Cell Awareness Day Celebration

Join on June 19, 2024, for a World Sickle Cell Awareness Day Celebration from 11:00...
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June 19, 2024

SCANJ Juneteenth Block Party with A Sickle Cellabration

The Sickle Cell Association of New Jersey invites you to join their Sickle CELLabration for...
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June 19, 2024

SCD Awareness Illumination- Niagra Falls

Landmarks and buildings all across the globe will be illuminated red and while to symbolize...
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June 19, 2024

SCD Meet & Greet- McMaster Children’s Hospital

Join the Sickle Cell Awareness Group of Ontario on June 19, 2024, for a Meet...
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June 19, 2024

SCDAA SickleTini Summer Soiree

SickleTini is back! Join Sickle Cell Disease Association of America, Inc to recognize World Sickle...
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June 19, 2024

SICKLE CELL WARRIORS OF WISCONSIN BLOOD DRIVE

Join Sickle Cell Warriors of Wisconsin as they host a mobile blood drive in Milwaukee,...
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June 19, 2024

World Health Organization’s World Sickle Cell Awareness Day webinar

This webinar will provide background, raise awareness, and discuss best practices in treating and managing...
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June 19, 2024

World Sickle Cell Day

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June 18, 2024

Howard University- 11th Annual World Sickle Cell Day Webinar

Join this free webinar is presented by the Howard University Center for Sickle Cell Disease....
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June 18, 2024

Sickle Cell Education & Awareness Symposium

Please join the Sickle cell Foundation at the Palm Beach Post on Tuesday, June 18th...
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June 18, 2024

Sickle Cell Sanctuary Grand Opening

The Grand Opening Ceremony for the Sickle Cell Sanctuary will be held at the Sickle...
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June 18, 2024

Strike Out Sickle Cell

It’s A Sickle Cell-ebration! Come out and celebrate with the Sickle Cell Anemia Resource Foundation-...
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June 18, 2024

World Sickle Cell Day Data Panel

In observance of World Sickle Cell Day, the HHS Office of the Assistant Secretary for...
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June 18, 2024

“Stigma” and “Uncertainty in Illness”- Webinar

Global Sickle Cell Alliance, Inc (GLOSCA) is offering a webinar on “STIGMA” AND “UNCERTAINTY IN...
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June 15, 2024

2024 World Sickle Cell Day Event

Join the Sickle Cell Foundation of Florida for their 2024 World Sickle Cell Day Event....
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June 15, 2024

26th Annual Sickle Cell Walk

The 26th Annual Sickle Cell Walk will be held Saturday, June 15, 2023 in Birmingham,...
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June 15, 2024

Houston Sickle Cell Curative & Modifying Therapies Summit & Health Fair

Houston is home to the largest medical center in the nation. Despite this, individuals living...
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June 15, 2024

Redteenth Cultural Festival

Join the Sickle Cell Foundation of Palm Beach County & Treasure Coast and the Village...
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June 14, 2024

World Blood Donor Day

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June 11, 2024

Terumo Blood and Cell Technologies Clinical Expert Meeting

Join Terumo for this Clinical Expert Meeting to hear discussion about providing quality patient care...
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June 10, 2024

Blood Advocacy Week

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June 8, 2024

Advocacy and Empowerment Program Session 6

Join SCAASF in a session receiving  social and medical advice.
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June 7, 2024 Broward County Convention Center

Foundation for Sickle Cell Disease Research (FSCDR) 18th Annual Sickle Cell Disease Research and Educational Symposium

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June 1, 2024

LGBTQ+ Pride Month Starts!

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June 1, 2024

Sickle Cell Foundation of Georgia Transition Series

READY... SET... TRANSITION! for ages 16-18. Preparing tens to live independently and live well with...
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